Batten (also called childhood dementia) is a rare and fatal metabolic disease in children.
If your child has Batten, it seems nothing is wrong until about the 5th year. Then a buildup of problems follows: severe loss of vision, epilepsy attacks, memory loss and dementia, children end up in a wheelchair, lose the ability to communicate and inevitably the child dies, usually between the 15th and 25th year of life. In the Netherlands, 1 in 50,000 children is affected by Batten. Worldwide that is 1 in 25,000 children.
Stichting Beat Batten finances research for a world without childhood dementia.
www.beatbatten.nl
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