Since 2001, we have been wholeheartedly committed to children and families affected by Batten/NCL syndrome. As a foundation, our mission is to make a positive impact on the lives of this small but special group of young people and their families. Batten/NCL syndrome is a rare and progressive neurological disorder that brings serious challenges.
We organize, among other things, an annual Family Fun Day. This special day offers a day full of fun and relaxation for children with Batten/NCL and their families. It is a moment for these families to come together, meet each other and put their worries aside for a while.
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